{"id":30,"date":"2018-12-26T14:53:31","date_gmt":"2018-12-26T14:53:31","guid":{"rendered":"https:\/\/charity.oceanwp.org\/?page_id=30"},"modified":"2026-08-15T10:05:21","modified_gmt":"2026-08-15T10:05:21","slug":"home","status":"publish","type":"page","link":"https:\/\/curetaok1.org\/","title":{"rendered":"Home"},"content":{"rendered":"\t\t
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\n\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t<\/path><\/svg>\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\tGet Involved<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\tWe are foundation for individuals and families <\/span>\n\t\t\t\t\n\t\t\t\t\taffected by TAOK1<\/span>\n\t\t\t\t<\/span>\n\t\t\t\t<\/h1>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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\"\"<\/figure>

Get Involved<\/h2>

Every contribution brings us closer to better diagnosis, care, and treatment for children with TAOK1. You can donate, volunteer, or help us spread awareness. Join our cause and become part of the change.<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tsupport us<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t
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\"\"<\/figure>

Families<\/span><\/h2>

A TAOK1 diagnosis can feel overwhelming at first. We bring together families from around the world to share knowledge, offer support, and walk this path side by side. Here you'll always find people who truly understand.<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tJoin Us<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t
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\"\"<\/figure>

Research<\/h2>

We fund and support scientific research into TAOK1. By connecting researchers with families who hold real data, we drive new studies forward and help shorten the path toward an effective treatment.<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tExplore research<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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Help us search for a treatment<\/h2>\t\t\t\t<\/div>\n\t\t\t\t
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TAOK1-associated disorder was first recognized only in 2019, and today there is no treatment for it. That can change \u2014 but only if someone builds the foundation for the research. As a family-led foundation, that’s exactly what we’re doing: connecting families worldwide, making the science usable, and funding the early work that future treatments depend on. Every gift moves us one step closer to answers for our children. Will you help?<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t

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Our warriors<\/h2>\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\tPola\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t
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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\tLaura\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t
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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\tHarry\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t
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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\tBenjamin\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t
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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\tAudrey\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t
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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\tShelly\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t
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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\tDonna\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t
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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\tNorma\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t
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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\tJocelyn\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t
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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\tBobby\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t
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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\tLucy\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t
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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\tCatherine\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t
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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\tNadine\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t
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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\tJames\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t
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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\tSarah\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t
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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\tWill\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t
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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\tPete\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t
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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\tMargaret\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t
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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\tTommy\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t
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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\tAndy\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t
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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\tEllen\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t
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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\tLeo\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t
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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\tLeland\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t
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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\tElisaberh\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t<\/path><\/svg>\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\tRead our stories!<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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Latest From the Blog<\/h2>\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\n\t\t\t\tWhat Is TAOK1-Associated Neurodevelopmental Disorder? A Guide for Families\t\t\t<\/a>\n\t\t<\/h3>\n\t\t\t\t
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If you’ve found your way to this page, you’ve probably just encountered a word that wasn’t in your vocabulary before: TAOK1. Maybe a geneticist said it. Maybe it appeared in your child’s test results. This article explains what the condition is in plain language – no jargon, just what you actually want to know at the beginning. A gene that helps build the brain Each of us has roughly 20,000 genes – instructions that tell our cells what to do. One of them is TAOK1 (short for Thousand And One amino acid Kinase 1). This gene codes for a protein<\/p>\n\t\t<\/div>\n\t\t\n\t\t\n\t\t\tRead More \u00bb\t\t<\/a>\n\n\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t\n\t\t\tKrzysztof\t\t<\/span>\n\t\t\t\t\n\t\t\tJuly 20, 2026\t\t<\/span>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/article>\n\t\t\t\t
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\n\t\t\t\n\t\t\t\tCall to Raise the Help\t\t\t<\/a>\n\t\t<\/h3>\n\t\t\t\t
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Proin a nunc odio. Duis ultricies, nisl non lobortis auctor, urna quam vulputate urna, ac cursus metus leo a neque. Aliquam nec lacus maximus neque vehicula suscipit. Cras feugiat semper justo vel rhoncus. Donec ut neque quis mauris lacinia dapibus. Proin eget erat pharetra, blandit urna sed, accumsan orci. Sed velit turpis, hendrerit quis dolor at, laoreet molestie risus. In auctor, lorem at rutrum sollicitudin, ante libero tincidunt ipsum, sit amet ultricies urna nibh in tellus. Pellentesque at massa nec metus vulputate ultrices a nec sem. Ut ultricies, nisl sed pellentesque mattis, odio metus luctus est, ut convallis felis dui<\/p>\n\t\t<\/div>\n\t\t\n\t\t\n\t\t\tRead More \u00bb\t\t<\/a>\n\n\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t\n\t\t\tKrzysztof\t\t<\/span>\n\t\t\t\t\n\t\t\tDecember 26, 2018\t\t<\/span>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/article>\n\t\t\t\t
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Uncategorized<\/div>\n\t\t\t\t
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\n\t\t\t\n\t\t\t\tMedical Camp\t\t\t<\/a>\n\t\t<\/h3>\n\t\t\t\t
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Proin a nunc odio. Duis ultricies, nisl non lobortis auctor, urna quam vulputate urna, ac cursus metus leo a neque. Aliquam nec lacus maximus neque vehicula suscipit. Cras feugiat semper justo vel rhoncus. Donec ut neque quis mauris lacinia dapibus. Proin eget erat pharetra, blandit urna sed, accumsan orci. Sed velit turpis, hendrerit quis dolor at, laoreet molestie risus. In auctor, lorem at rutrum sollicitudin, ante libero tincidunt ipsum, sit amet ultricies urna nibh in tellus. Pellentesque at massa nec metus vulputate ultrices a nec sem. Ut ultricies, nisl sed pellentesque mattis, odio metus luctus est, ut convallis felis dui<\/p>\n\t\t<\/div>\n\t\t\n\t\t\n\t\t\tRead More \u00bb\t\t<\/a>\n\n\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t\n\t\t\tKrzysztof\t\t<\/span>\n\t\t\t\t\n\t\t\tDecember 26, 2018\t\t<\/span>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/article>\n\t\t\t\t<\/div>\n\t\t\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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Testimonials<\/h2>\t\t\t\t<\/div>\n\t\t\t\t
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CureTAOK1 is moving faster than anyone expected. I support this foundation because I believe a treatment is within reach and every contribution brings that day closer.<\/div>\n\t\t\t\n\t\t\t\t\t\t
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\n\t\t\t\t\t\t\t\"\"\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t
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Maria Garcia <\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t
University of Cambridge<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t
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Behind every rare diagnosis there is a family waiting for answers. This foundation gives them both hope and real scientific progress. I encourage everyone to support its work.<\/div>\n\t\t\t\n\t\t\t\t\t\t
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Mary Smith<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t
MIT<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t
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Rare disease research advances only when people decide it matters. I stand behind this foundation, I believe we will find a cure, and I ask you to help us get there.<\/div>\n\t\t\t\n\t\t\t\t\t\t
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Katarzyna Nowak<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t
Uniwersytet Warszawski<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

Get Involved We are foundation for individuals and families affected by TAOK1 Get Involved Every contribution brings us closer to better diagnosis, care, and treatment for children with TAOK1. You can donate, volunteer, or help us spread awareness. Join our cause and become part of the change. support us Families A TAOK1 diagnosis can feel […]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":1,"comment_status":"closed","ping_status":"closed","template":"","meta":{"give_campaign_id":0,"_angie_page":false,"ocean_post_layout":"full-screen","ocean_both_sidebars_style":"","ocean_both_sidebars_content_width":0,"ocean_both_sidebars_sidebars_width":0,"ocean_sidebar":"0","ocean_second_sidebar":"0","ocean_disable_margins":"enable","ocean_add_body_class":"","ocean_shortcode_before_top_bar":"","ocean_shortcode_after_top_bar":"","ocean_shortcode_before_header":"","ocean_shortcode_after_header":"","ocean_has_shortcode":"","ocean_shortcode_after_title":"","ocean_shortcode_before_footer_widgets":"","ocean_shortcode_after_footer_widgets":"","ocean_shortcode_before_footer_bottom":"","ocean_shortcode_after_footer_bottom":"","ocean_display_top_bar":"default","ocean_display_header":"default","ocean_header_style":"","ocean_center_header_left_menu":"0","ocean_custom_header_template":"0","ocean_custom_logo":0,"ocean_custom_retina_logo":0,"ocean_custom_logo_max_width":0,"ocean_custom_logo_tablet_max_width":0,"ocean_custom_logo_mobile_max_width":0,"ocean_custom_logo_max_height":0,"ocean_custom_logo_tablet_max_height":0,"ocean_custom_logo_mobile_max_height":0,"ocean_header_custom_menu":"0","ocean_menu_typo_font_family":"0","ocean_menu_typo_font_subset":"","ocean_menu_typo_font_size":0,"ocean_menu_typo_font_size_tablet":0,"ocean_menu_typo_font_size_mobile":0,"ocean_menu_typo_font_size_unit":"px","ocean_menu_typo_font_weight":"","ocean_menu_typo_font_weight_tablet":"","ocean_menu_typo_font_weight_mobile":"","ocean_menu_typo_transform":"","ocean_menu_typo_transform_tablet":"","ocean_menu_typo_transform_mobile":"","ocean_menu_typo_line_height":0,"ocean_menu_typo_line_height_tablet":0,"ocean_menu_typo_line_height_mobile":0,"ocean_menu_typo_line_height_unit":"","ocean_menu_typo_spacing":0,"ocean_menu_typo_spacing_tablet":0,"ocean_menu_typo_spacing_mobile":0,"ocean_menu_typo_spacing_unit":"","ocean_menu_link_color":"","ocean_menu_link_color_hover":"","ocean_menu_link_color_active":"","ocean_menu_link_background":"","ocean_menu_link_hover_background":"","ocean_menu_link_active_background":"","ocean_menu_social_links_bg":"","ocean_menu_social_hover_links_bg":"","ocean_menu_social_links_color":"","ocean_menu_social_hover_links_color":"","ocean_disable_title":"on","ocean_disable_heading":"default","ocean_post_title":"","ocean_post_subheading":"","ocean_post_title_style":"","ocean_post_title_background_color":"","ocean_post_title_background":0,"ocean_post_title_bg_image_position":"","ocean_post_title_bg_image_attachment":"","ocean_post_title_bg_image_repeat":"","ocean_post_title_bg_image_size":"","ocean_post_title_height":0,"ocean_post_title_bg_overlay":0.5,"ocean_post_title_bg_overlay_color":"","ocean_disable_breadcrumbs":"default","ocean_breadcrumbs_color":"","ocean_breadcrumbs_separator_color":"","ocean_breadcrumbs_links_color":"","ocean_breadcrumbs_links_hover_color":"","ocean_display_footer_widgets":"default","ocean_display_footer_bottom":"default","ocean_custom_footer_template":"0","footnotes":""},"class_list":["post-30","page","type-page","status-publish","hentry","entry","has-media"],"yoast_head":"\nHome - CureTAOK1<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/curetaok1.org\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Home - CureTAOK1\" \/>\n<meta property=\"og:description\" content=\"Get Involved We are foundation for individuals and families affected by TAOK1 Get Involved Every contribution brings us closer to better diagnosis, care, and treatment for children with TAOK1. 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Join our cause and become part of the change. support us Families A TAOK1 diagnosis can feel […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/curetaok1.org\/\" \/>\n<meta property=\"og:site_name\" content=\"CureTAOK1\" \/>\n<meta property=\"article:modified_time\" content=\"2026-08-15T10:05:21+00:00\" \/>\n<meta property=\"og:image\" content=\"http:\/\/curetaok1.org\/wp-content\/uploads\/2026\/06\/heart-2.png\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data1\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/curetaok1.org\\\/\",\"url\":\"https:\\\/\\\/curetaok1.org\\\/\",\"name\":\"Home - CureTAOK1\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/curetaok1.org\\\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\\\/\\\/curetaok1.org\\\/#primaryimage\"},\"image\":{\"@id\":\"https:\\\/\\\/curetaok1.org\\\/#primaryimage\"},\"thumbnailUrl\":\"http:\\\/\\\/curetaok1.org\\\/wp-content\\\/uploads\\\/2026\\\/06\\\/heart-2.png\",\"datePublished\":\"2018-12-26T14:53:31+00:00\",\"dateModified\":\"2026-08-15T10:05:21+00:00\",\"breadcrumb\":{\"@id\":\"https:\\\/\\\/curetaok1.org\\\/#breadcrumb\"},\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/curetaok1.org\\\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\\\/\\\/curetaok1.org\\\/#primaryimage\",\"url\":\"https:\\\/\\\/curetaok1.org\\\/wp-content\\\/uploads\\\/2026\\\/06\\\/heart-2.png\",\"contentUrl\":\"https:\\\/\\\/curetaok1.org\\\/wp-content\\\/uploads\\\/2026\\\/06\\\/heart-2.png\",\"width\":512,\"height\":512},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/curetaok1.org\\\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\\\/\\\/curetaok1.org\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Home\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/curetaok1.org\\\/#website\",\"url\":\"https:\\\/\\\/curetaok1.org\\\/\",\"name\":\"CureTAOK1.org\",\"description\":\"\",\"publisher\":{\"@id\":\"https:\\\/\\\/curetaok1.org\\\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/curetaok1.org\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"en-US\"},{\"@type\":\"Organization\",\"@id\":\"https:\\\/\\\/curetaok1.org\\\/#organization\",\"name\":\"CureTAOK1\",\"url\":\"https:\\\/\\\/curetaok1.org\\\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\\\/\\\/curetaok1.org\\\/#\\\/schema\\\/logo\\\/image\\\/\",\"url\":\"https:\\\/\\\/curetaok1.org\\\/wp-content\\\/uploads\\\/2026\\\/06\\\/cropped-curetaok1_logo_flat_colors_transparent.png\",\"contentUrl\":\"https:\\\/\\\/curetaok1.org\\\/wp-content\\\/uploads\\\/2026\\\/06\\\/cropped-curetaok1_logo_flat_colors_transparent.png\",\"width\":1805,\"height\":510,\"caption\":\"CureTAOK1\"},\"image\":{\"@id\":\"https:\\\/\\\/curetaok1.org\\\/#\\\/schema\\\/logo\\\/image\\\/\"}}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Home - CureTAOK1","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/curetaok1.org\/","og_locale":"en_US","og_type":"article","og_title":"Home - CureTAOK1","og_description":"Get Involved We are foundation for individuals and families affected by TAOK1 Get Involved Every contribution brings us closer to better diagnosis, care, and treatment for children with TAOK1. 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