CureTAOK1 is a family-led foundation with a simple mission: to connect families affected by TAOK1, make the science easier to understand, and raise funds to advance toward better care and treatment.
Our goals:
- Connect families across regions, safely and quickly.
- Inform with plain-language, trustworthy TAOK1 information.
- Organize consented data that builds understanding of TAOK1 (through our planned registry).
- Fund research with clear, transparent goals.
Our values: Collaboration · Transparency · Urgency.